Wednesday, August 20, 2014

"You are stronger than you seem"

Hello there!!!

Sorry for the extended break from blogging! Just wanted to get all of our ducks in a row before filling all of you in on Ollie. 

In April, Ollie had a tonsillectomy and adenoidectomy for severe obstructive sleep apnea. We were told that this was extremely urgent because his sleep study showed some very concerning information. We were under the impression that there was no other option. The doctor told us that doing this procedure would eliminate his obstruction. Ollie endured yet another painful surgery and rough recovery. 

We had a repeat sleep study in June. I patiently waited 3 long weeks to be told that Ollie's sleep study was significantly worse than prior to surgery! I sat in shock for a what seemed like several hours...baffled by the called I just received. During the conversation, I demanded we have a pulmonologist added to our team and honestly this should have been added when Ollie was born. 

This week we meant with pulmonologist and I must say that I adore her! I preached my concerns, aggravations, and my advocacy of knowing Ollie's needs. In return, she answered all of my questions and said she would love to join us on the roller coaster ride. She is all about the less invasive approach....I wish there were more doctors like her! We chatted about the options we have left concerning Ollie's airway and lungs and came up with a game plan. The doctor sent us home with nebulizer treatments because she noticed that Ollie's lungs were inflamed due to aspirating on his saliva. At least the nebulizer is a cute seal named Sami that has a turtle mask. She is going to attempt to fit Ollie for either a cpap or bipap. There are many factors playing into this plan that could make it impossible, but we all want to at least give it a try. Many prayers are going up that this is the answer because if it isn't we are left with only one option....a trach. While there are benefits to the trach I was hoping we could avoid it.

Ollie is working hard everyday to become stronger! He is weighing in at 13 pounds 11 ounces at 18 months old. He is showing us more of who he is...quite stubborn I might add. Owen is truly an amazing older brother to Ollie. Owen is by far the best therapy for Ollie...their bond is undeniable!

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